Keithville, LA (KMSS) — Louisiana loves its Cajun heritage, but that same lineage makes them more susceptible to carry the Tay-Sachs gene. About one in 27 Cajuns test positive for carrying the gene, but that doesn't mean all 27 have Tay-Sachs.
The disease can only be passed on when both parents carry the gene, and even then, there is still only a chance the child will inherit the disease. Despite the high numbers of carriers for the gene, only 12-16 babies are diagnosed with the disease each year, but one of them was Lexi Gordon. Both of her parents were carriers of the gene, but neither was aware of it.
There is no cure for Tay-Sachs, and with so few cases of the disease, research is slow and limited, something that Lexi's father, Bryan finds extremely frustrating, especially when he sees the life his daughter has with Tay-Sachs. She is not able to swallow, so she's on a feeding tube, and is losing even more functions. She used to be able to stand and sit up, but now, she has lost the ability to do those activities.
Sadly, the future looks bleak for Lexi. Most children with Tay-Sachs die before they reach 6. At just two, Lexi's family is focusing on building as many memories as they can. They aren't giving up praying for a cure for the disease and for Lexi, but they know that isn't likely.
Knowing how the diagnosis of their daughter made them feel, the Gordons are now focusing on raising awareness and helping babies in the future that may be diagnosed with Tay-Sachs. One of the ways they are doing that is with a 5k run put on by Sportspectrumusa.com to benefit both Tay- Sachs research and also raise money to pay for medical equipment not covered by insurance.
For more information on Lexi, visit her website, www.lexiforlife.com
Date & Starting Time: Saturday, July 13, 2013; ½ mile fun run starts at 8 am, 5K starts at 8:15 am.
Course Description: The ½ mile fun run and 5K race will start and finish on the Shreveport Riverfront near SciPort!
Registration: Early Registration is $18 till June 12, $20 through July 12th. Race Day, Registration is $25. Lexi’s Fun Run for Kids is $10, Sale Ends 7/8/13. Angel Runner (Shirt Only) $20. Commemorative Ribbon $10. You may register online at www.sportspectrumusa.com You may pay with a Credit Card ONLINE ONLY or pay with cash or check at Sportspectrum, 6970 Fern Avenue, 71105. REGISTER EARLY!!!! No shirts guaranteed to late registrants.
Packet Pick Up: You may pick up your packet at Sportspectrum Thursday, July 11th from 12 pm-6 pm and Friday, July 12th from 10 am-5:30 pm. You may also pick up your packet on Race Day at the Race Site at 7:30 am.
Awards: Overall Male & Female finishers in the 5K race will receive awards as well as overall male and female age group finishers.
Age Groups: 12 and Under, 13-19, 20-29, 30-39, 40-49, 50+
Post Party: Be sure to stay after the race for refreshments and awards!
Special Note: Strollers, wagons, baby joggers, and any hand pushed or pulled vehicle will be allowed on the course, but at a walk pace capacity only. Absolutely NO in-line skates, roller skates or runners with baby strollers will be allowed on run course. This rule is an RRCA regulation!
SIGN UP ONLINE at www.sportspectrumusa.com
WAIVER & RELEASE
In consideration of my being admitted to enter Lexi For Life and Fun Run, I, for myself, my heirs, and assigns, executors and administrators, do hereby forever release and discharge Sportspectrum, RRCA, SRM, NWLRA, of and from any and all claims or demands for damages, injuries, or liability, in any manner arising out of participation in this event. I agree to indemnify and hold harmless the parties released above from any claims or demands for damages, for injuries or liability, in any way arising out of my participation in this event. I certify that I have prepared myself for this race and that I am in adequate physical condition to complete the event I have entered. I agree to follow all rules of this race and to permit myself be removed from the competition if in the opinion of Race Management that continuing would endanger my health.
The Official Lexi For Life 5K & Fun Run Entry Form
Please Circle: 5K Fun Run for Kids Angel Runner Commemorative Ribbon
Last Name________________________________ First Name________________________________
Address__________________________________ City_______________________ Zip Code_________________
Birth Date__/__/__ Male or Female T-Shirt Size (circle) YS YM YL S M L XL XXL(add $2.00)
I understand and agree to all conditions of waiver. Signature______________________________________________________
Parent/Guardian Signature for Participant under 18 years old______________________________________________________